Cerebral Palsy Presentation
is design to teach the general public about people with disabilities.
One of Jacy Arthur's ambition is to spread the word through education with her Cerebral Palsy Presentation that shows that we are living in a time of acceptance, well, in relations to people with disabilities.
This is not the dark ages, nor it is the 1950’s, where people that appear different were locked up, hidden away from society, away from the sight of the everyday person.
However, in modern society, people with mild Cerebral Palsy lives and are employed in the modern work force. They are office’s workers, they play sports, they marry and they live life to the fullest.
Together, Jacy and Brad give you an honest account of their own lives and they try to explain how Cerebral Palsy, sometimes, rules their lives.
If Only You Knew Presentation
The presentation is aim towards people who have direct contact with people who have disabilities. This could be a cafe worker who may be asked to read the menu. A person at the checkout to be ready just in case they are required to assist. Some people may say that they should have a carer. But this is not alway the case, they may just need a friendly hand on occasions.
Jacy Arthur and Brad have been doing their presentation each school term at St Paul's College, Gillie Plains, north of Adelaide City. This has been a regular event on the school's calendar since 201. It has been very successful because they keep asking Jacy and Brad back.
There has also been several one-offs around Adelaide as well.
Let kids be kids
When they were young, they did everything.
Brad played cricket with his brothers.
From a three holes’ putt-putt which his father made, to a nine holes’ short golf course, which he created himself in the big, backyard of their farm. Brad was also knocked out playing league with his brothers.
The same applied to Jacy.
Wherever Jacy’s family went, Jacy went.
Whatever Jacy’s family did, she did.
There are a lot of examples this in her first book "If Only You Knew".
One just example is below:-
The day I sun-baked with the crocodiles.
It was during year 8 that we had another long holiday. We went the same way to Darwin that we had on the first trip. But this time, we went to a few different places. This holiday was for six weeks, and there were five people in one car;
Mum, Dad, Rusty, Joanne and I.
We went for a week, camping three different places. The first one was called Shady Camp.
This was an area with a river and it was desert. We went on the boat (Peter having brought his small one with him).
I got one heck of a fright when I saw all the crocodiles everywhere. There were so many of them lying in the sun. Also, I could see heaps of them in the water. You could only see their two little eyes above the surface; you could have mistaken them for leaves floating
on the top of the river.
We camped under a tree about 20ft from the lake. All night I kept thinking that the crocs might come up to the camp, but for some reason they didn’t come anywhere close to our tents. I wonder why? Perhaps they didn’t fancy sweaty food or maybe they were scared of the great angler!
To see what happens,
and stories like this,
read the book.
What is disability
and Cerebral Palsy?
In her Cerebral Palsy Presentation,
Jacy will explain that there are very
broad ranges of people with disabilities,
some are physical and other are mentality.
Mental disorders are assumed to result from some
behavioural, psychological, or biological dysfunction in the individual.
Whereas, Physical disability can also be cause by brain damage.
A physical disability is a limitation on a person's physical functioning, mobility, dexterity or stamina. Other physical disabilities include impairments which limit other facets of daily living, such as respiratory disorders, blindness, epilepsy and sleep disorders.
About Cerebral Palsy
While Cerebral Palsy (pronounced seh-ree-brel pawl-zee) is a blanket term commonly referred to as “CP”. It is described by loss or impairment of motor functions. Cerebral Palsy is caused by brain damage. This is caused by a brain injury or an abnormal development of the brain that occurs while a child’s brain is still developing — before birth, during birth, or immediately after birth.
Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. It can also impact fine motor skills, gross motor skills and oral motor functioning.
Mild cerebral palsy means a child can move without assistance;
his or her daily activities are not limited.
Moderate cerebral palsy means a child will need braces, medications,
and adaptive technology to accomplish daily activities.
Severe CP means a child will require a wheelchair and
will have significant challenges in accomplishing daily activities.
ce•re•bral / of the brain
pal•sy / lack of muscle control
Each person is different
People come in all shapes. They come with different features, different eye colour, different body shapes. No two people are the same. Even identical twins are not 100% mirror images. This can also be said for people with disabilities, they not same. And to could go one step further, one person with Cerebral Palsy is completely different to another person with CP.
Jacy and Brad 's Level of Cerebral Palsy
Both, Jacy and Brad has somewhere between mild and moderate. Going strictly by the definitions above, they both need one or two pieces of adaptive technology to accomplish daily activities.
Jacy have specials knives and hers stick to type with.
Some differences between Jacy and Brad
The most noticeable different between Jacy and Brad is balance. Jacy’s balance is good. Ok, she may not be able to walk a tightrope, nor ride a bicycle. But it would take a heavy knock to put her to the ground. Whereas with Brad, the wind of a passing car would put him on his rear. This is probably why Jacy doesn’t blow Brad kisses, the force would knock him over.
Another example is one of the most important body part, the Thumb. Just try to pick up a twenty-cent piece, a can of coke, something without using you thumb, I bet most people would become frustrated. However, Brad’s thumbs works, where as Jacy’s thumb is
non-functional. So, everyday tasks became difficult for Jacy.
And, finally, carrying a glass of water.
Brad has no hope of this, it would be an empty glass
before he has taken a step, whereas Jacy can.
Together we work as a very unique team!
Are Jacy and Brad smart?
Brad is a computer programmer/analyst
for a major bank for 20 years.
Jacy is a Graphic Designer for almost 20.
So you tell me
People with disability do not have Babies.
Some of the silly things we must put up with is an incident with Centrelink. Before Jacy Arthur had her beautiful baby boy, Luke, she was on the Disability Support Pension (DSP) and things was fine. When Luke came a long, Centrelink inform her that there wasn’t any provision in the DSP for single mothers. “What? Disabled people do not have babies. Well, guys, I am disabled and I just had a baby”.
For a decade, Jacy was on a Single Parent Pension.
A requirement of this was to front at Centrelink, each fortnight.
It was imperative for Centrelink to had proof of her working status.
As this was bad enough, the rule was eventually change, but
did they informed Jacy? No! She had to hear it from third person.
Can they travel?
Normally when a person with disability person say
‘I travel overseas alone’, it often mean they were accompany by their support worker which is fine.
Jacy and Brad with their son to New Zealand by themselves.
We are so proud to be able to things for ourselves,
this gives us great joy!
Brad has travelled to Singapore and New Zealand on his own,
but he did stay with friends. He also been to England,
Italy and the West Coast of the United States with family.
A couple of years ago, Jacy and Brad flew to Sydney, hired a car
and drove it from Sydney to Brisbane, over one thousand kilometres.
And we meet an overexcited 'fairy'!
But that's another story.(in the 2nd book)
Can they drive a car or use public transport?
Jacy learnt to drive in her home town of Broken Hill,
whereas brad learnt to drive in the town he grew up, Grafton.
He established himself as a driver in Sydney.
Jacy on the other hand became a driver in Adelaide.
She often drives to Mildura to see her mum.
For ten years, while living in The Blue Mountains,
Brad drove to and back each day. A distance of 130kms.
For ten years, while living in The Blue Mountains,
Brad drove to and from work each day. A distance of 130kms.
Both their cars, Brad’s Hyundai i20 and Jacy’s brand
new i30 are not modified in any way.
Recently, they drove around the South Island of
New Zealand, another 1000 kilometres.
Driving in our cars gives us so much pleasure that we often say to ourselves "We are so lucky to be able to just get the car and drive!"
Can people who has CP have other disabilities?
Jacy also has serve deafness which is not cause by her
Cerebral Palsy. If she did not have CP,
she would have been still severely deaf.
Whereas Brad has just have Cerebral Palsy.
Is Jacy and Brad qualified to talk about physical or mentally disability?
Jacy has Certicate 3 in Disability and Mental Health and
Brad has a distinction in Cerebral Palsy Awareness
Both are living with CP everyday.